Assesment of an intervention to reduce the impact of stigma on people with HIVenabling them to cope with it

  1. Fuster Ruiz de Apocada, María Jóse
  2. Molero Alonso, Fernando
  3. Ubillos Landa, Silvia
Revista:
Anales de psicología

ISSN: 0212-9728 1695-2294

Año de publicación: 2016

Volumen: 32

Número: 1

Páginas: 39-48

Tipo: Artículo

Otras publicaciones en: Anales de psicología

Resumen

The goal of this study was to assess an intervention program to reduce the impact of stigma on people with HIV and to enable them to cope with it. A quasi-experimental design, with non-equivalent control group and pre- and posttest was used. Participants were 221 people with HIV, of whom 164 received the intervention and 56 made up the nonequivalent control groups. The dependent variables were perception of stigma�enacted and internalized�, self-esteem, perception of selfefficacy, strategies used to cope with stigma�primary control, secondary control, and avoidance�and quality of life. Analysis of variance (MANOVAS and ANOVAS) was conducted to determine pretest differences and differential scores in both groups, and analysis of covariance (MANCOVAS and ANCOVAS) was performed to assess the efficacy of the program. The results showed reduction of perceived stigma and avoidance strategies and an increase in perceived self-efficacy to cope with stigma, disposition to use approach strategies, self-esteem, and quality of life. These results indicate that it is possible to train people with HIV to cope with stigma

Referencias bibliográficas

  • Agirrezabal, A., Fuster, M. J, & Valencia, J. (2009). Informe FIPSE. Inte-gración laboral de las personas con VIH. Estudio sobre la identificación de las necesidades laborales y la actitud empresarial. Madrid: FIPSE.
  • Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behav-ioral change. Psychological Review, 84, 191-215.
  • Bartholomew, L. K., Parcel, G. S., Kok, G., Gottlieb, N. H., & Fernan-dez, M. E. (2011). Planning health promotion programs: An intervention mapping approach. San Francisco, CA: Jossey-Bass.
  • Berger, B. E., Ferrans, C. E., & Lashley, F. R. (2001). Measuring stigma in people with HIV: Psychometric assessment of the HIV Stigma Scale. Research in Nursing Health, 24, 518-529. doi: 10.1002/nur.10011
  • Bos, A. E., Pryor, J. B., Reeder, G. D., & Stutterheim, S. E. (2013). Stig-ma: Advances in theory and research. Basic and Applied Social Psy-chology, 35, 1-9. doi: 10.1080/01973533.2012.746147
  • Bos, A. E., Schaalma, H. P., & Pryor, J. B. (2008). Reducing AIDS-related stigma in developing countries: The importance of theo-ry-and evidence-based interventions. Psychology, Health & Medi-cine, 13, 450-460. doi:10.1080/13548500701687171
  • Bunn, J. Y., Solomon, S. E., Millar, C., & Forehand, R. (2007). Meas-urement of stigma in people with HIV: A re-examination of the HIV Stigma Scale. AIDS Education and Prevention, 19, 198-208. doi: 10.1521/aeap.2007.19.3.198
  • Cao, H., He, N., Jiang, Q., Yang, M., Liu, Z., Gao, M., . . . Detels, R. (2010). Stigma against HIV-infected persons among migrant wom-en living in Shanghai, China. AIDS Education and Prevention: Official Publication of the International Society for AIDS Education, 22, 45–454. doi:10.1521/aeap.2010.22.5.445
  • Clum, G., Chung, S. E., Ellen, J. M., & Adolescent Medicine Trials Network for HIV/AIDS Intervention. (2009). Mediators of HIV-related stigma and risk behavior in HIV infected young women. AIDS Care, 21, 1455-1462. doi:10.1080/09540120902883069
  • Compas, B. E., Connor-Smith, J. K., Saltzman, H., Thompsen, A. H., & Wadsworth, M. E. (2001). Coping with stress during childhood and adolescence: Problems, progress and potential in theory and re-search. Psychological Bulletin, 127, 87-127. doi: 10.1037/0033-2909.127.1.87
  • Cook, T. D. (1991). Clarifying the warrant for generalized causal in-ferences in quasi-experimentation. In M. W. McLaughlin & D. Phillips (Eds.), Evaluation and Education at Quarter Century (pp. 115-144). Chicago: National Society for the Study of Education.
  • Fuster, M. J. (2011). La percepción del estigma en las personas con VIH: sus efec-tos y formas de afrontamiento (Doctoral Thesis). Retrieved at: http://e-spacio.uned.es/fez/eserv.php?pid=tesisuned:Psicologia-MJfuster&dsID=Documento.pdf
  • Fuster-RuizdeApodaca, M. J., Molero, F., Biel, D., & Barranco, C. (2013). Capacitación de las personas con VIH para afrontar el es-tigma y la discriminación. Manual de intervención. Retrieved at http://www.cesida.org/images/stories/documentacion/manual_cesida_potenciacion.pdf
  • Fuster, M. J., Molero, F., Gil de Montes, L., Vitoria, A., & Agirrezabal, A. (2013). HIV- and AIDS-related stigma: Psychosocial aspects in a representative Spanish sample. Spanish Journal of Psychology, 16, 1-8. doi:10.1017/sjp.2013.52
  • Gamst, G., Meyer, L. S., & Guarino, A. J. (2008). Analysis of variance de-signs. A conceptual and computacional approach with SPSS and SAS. New York, NY: Cambridge University Press.
  • Herek, G. M., Gillis, J. R., & Cogan, J. C. (2009). Internalized stigma among sexual minority adults: Insights from a social psychologi-cal perspective. Journal of Counselling Psychology, 56, 32-43. doi: 10.1037/a0014672
  • Herek, G. M., Saha, S., & Burack, J. (2013). Stigma and psychological distress in people with HIV/AIDS. Basic and Applied Social Psycholo-gy, 35, 41-54. doi: 10.1080/01973533.2012.746606
  • Kalichman, S. C., Simabayi, L., Cloete, A., Mthembu, P. P., Mkhonta, R. N., & Ginindza, T. (2009). Measuring AIDS stigmas in people liv-ing with HIV/AIDS: The Internalized AIDS-Related Stigma Scale. AIDS Care, 21, 87-93. doi:10.1080/09540120802032627
  • Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
  • Link, B., Castille, D. M., & Stuber, J. (2008). Stigma and coercion in the context of outpatient treatment for people with mental illness-es. Social Science & Medicine, 67, 409-419. doi: 10.1016/j.socscimed.2008.03.015
  • Logie, C., & Gadalla, T. M (2009). Meta-analysis of health and demo-graphic correlates of stigma towards people living with HIV. AIDS Care, 21, 742-53. doi: 10.1080/09540120802511877
  • Miller, C. T. (2004). Social psychological perspectives on coping with stressors related to stigma. In S. Levin & C. van Laar (Eds.), Stigma and group inequality (pp. 21-44). New Jersey: Erlbaum.
  • Miller, C. T., & Major, B. (2000). Coping with stigma and prejudice. In T. F. Heatherton, R. E. Kleck, M. R. Hebl, & J. G. Hull (Eds.), The social psychology of stigma (pp. 243-272). New York: Guilford.
  • Moscowitz, J. T., Hult, J. R., Bussolari, C., & Acree, M. (2009). What works in coping with HIV? A meta-analysis with implications for coping with serious illness. Psychological Bulletin, 135, 1, 121-141. doi: 10.1037/a0014210
  • Oliva, J. (2010). Labour participation of people living with HIV/AIDS in Spain. Health economics, 19, 491-500. doi: 10.1002/hec.1487
  • Pérez-Llantada, M. C., López de la Llave, A., & Gutierrez, T. (2009). Evaluación de programas e intervenciones en psicología. Madrid: Dykinson.
  • Remor, E., Fuster, M. J., Ballester-Arnal, R., Gómez-Martínez, S., Fu-maz, C. R., González-Garcia, M., ... Molero, F. (2012). Develop-ment of a new instrument for the Assessment of Psychological Predictors of Well-being and Quality of Life in People with HIV or AIDS. AIDS and Behavior, 16, 2414-2423. doi: 10.1007/s10461-012-0230-1
  • Ruiz, M. A., & Baca, E. (1993). Design and validation of the “Quality of Life Questionnarie” (“Cuestionario de Calidad de Vida”, CCV): A generic health-related quality of life instrument. European Journal of Psychological Assessment, 9(1), 19-32.
  • Sanjuán, P., Molero, F., Fuster, M. J., & Nouvilas, E. (2013). Coping with HIV related stigma and well-being. Journal of Happiness Studies,14(2), 709-722. doi: 10.1007/s10902-012-9350-6
  • Sengupta, S., Banks, B., Jonas, D., Miles, M. S., & Smith, G. C. (2011). HIV interventions to reduce HIV/AIDS stigma: A systematic re-view. AIDS and Behavior, 15, 1075-1087. doi: 10.1007/s10461-010-9847-0
  • Shadish, W. R., Cook, T. D., & Campbell, D. T. (2003). Experimental and quasi-experimental designs for generalized causal inference. Boston: Hough-ton-Mifflin.
  • Steward, W. T., Chandy, S., Singh, G., Panicker, S. T., Osmand, T. A., Heylen E., & Ekstrand, M. L (2011). Depression is not an inevita-ble outcome of disclosure avoidance: HIV stigma and mental health in a cohort of HIV-infected individuals from southern In-dia. Psychology, Health and Medicine, 16, 74-85. doi: 10.1080/13548506.2010.521568
  • Stutterheim, S. E., Bos, A. E., Pryor, J. B., Brands, R., Liebregts, M., & Schaalma, H. P. (2011). Psychological and social correlates of HIV status disclosure: The significance of stigma visibility. AIDS Edu-cation and Prevention, 23, 382-392. doi: 10.1521/aeap.2011.23.4.382
  • Tsutsumi, A., & Izutsu, T. (2010). Quality of Life and Stigma. In V. R. Preedy, R. R. Watson (Eds.), Handbook of disease burdens and quality of life measures (pp. 3490-3499). New York: Springer.
  • UNAIDS (2002). Marco conceptual y bases para la acción. Estigma y discrimi-nación relacionados con el VIH/SIDA. Retrieved at www.unaids.org
  • Visser, M., Kershaw, T., Makin, J. D., & Forsyth, B. W. (2008). Devel-opment of parallel scales to measure HIV-related stigma. AIDS Behavior, 12, 759-771. doi:10.1007/s10461-008-9363-7