Derechos y calidad de vida en personas con discapacidad intelectual y mayores necesidades de apoyo

Bibliographische Referenzen

• AGUIRRE, P. (2011). Guía de buenas prácticas sobre el acceso y tutela de los derechos de las personas con discapacidad en sus relaciones con la administración de justicia, a la luz de la Convención de la ONU y de las reglas de Brasilia. Recuperado de http://www.cermi.es/ esES/Biblioteca/Lists/Publicaciones/Attachments/261/GUIA%20BUENAS%20PRÁCTICAS%20REGLAS%20BASILIA.pdf.
• ASSOCIATION FOR REAL CHANGE (2015). Creating an ordinary life: active support and learning disability. Recuperado de http://arcuk.org.uk/activesupport/files/2015/05/CAOL-Pro- ject-Publication.pdf.
• BAKEL, M., EINARSSON, I., ARNAUD, C., CRAIG, S., MICHELSEN, S. I., PILDAVA, S., ... y CANS, C. (2014). Monitoring the prevalence of severe intellectual disability in children across Europe: feasibility of a common database. Developmental Medicine and Child Neurology, 56 (4), 361-369. //doi.org/10.1111/dmcn.12281
• BAKER, P. A. (2007). Individual and service factors affecting deinstitutionalization and community use of people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 20, 105-109. //doi.org/10.1111/j.1468-3148.2006.00313.x
• BEADLE-BROWN, J., HUTCHINSON, A. y WHELTON, B. (2012). Person-centred active support: increasing choice, promoting independence and reducing challenging behaviour. Journal of Applied Research in Intellectual Disabilities, 25 (4), 291-307. //doi.org/10.1111/j.1468-3148.2011.00666.x
• Beadle-BrowN, J., leigh, J., wheltoN, B., richardsoN, L., BeechaM, J., BAUMKER, T. y BRADSHAW, J. (2015). Quality of life and quality of support for people with severe intellectual disability and complex needs. Journal of Applied Research in Intellectual Disabilities, 29 (5), 409-421.
• BEADLE-BROWN, J., MURPHY, G. Y DITERLIZZI, M. (2009). Quality of life for the Camberwell cohort. Journal of Applied Research in Intellectual Disabilities, 22 (4), 380-390. //doi.org/10.1111/j.1468-3148.2008.00473.x
• Bellamy, G., Croot, L., Bush, A., Berry, H. Y SMITH, A. (2010). A study to define: profound and multiple learning disabilities (PMLD). Journal of Intellectual Disabilities, 14 (3), 221-235. BELVA, B. C., MATSON, J. L., SIPES, M. Y BAMBURG, J. W. (2012). An examination of specific communication deficits in adults with profound intellectual disabilities. Research in Developmental Disabilities, 33 (2), 525-529.
• Bigby, C. (2004). Ageing with a lifelong disability: a guide to practice, program, and policy issues for human services professionals. Londres: Jessica Kingsley Publishers.
• Bigby, C. Y CRAIG, D. (2016). A case study of an intentional friendship between a volunteer and adult with severe intellectual disability: "My life is a lot richer!". Journal of Intellectual and Developmental Disability, 41 (1), 1-10.
• BIGBY, C. Y FYFFE, C. (2009). Position statement on housing and support for people with severe or profound intellectual disability. Journal of Intellectual and Developmental Disability, 34 (1), 96-100. //doi.org/10.1080/13668250802676020
• BRAMSTON, P., CHIPUER, H. Y PRETTY, G. (2005). Conceptual principles of quality of life: an empirical exploration. Journal of Intellectual Disability Research, 49 (10), 728-733. //doi.org/10.1111/j.1365-2788.2005.00741.x
• CAMPO, S. F., SHARPTON, W. R., THOMPSON, B. Y SEXTON, D. (1997). Correlates of the quality of life of adults with severe or profound mental retardation. Mental Retardation, 35, 329-337. //doi.org/10.1352/0047-6765(1997)035<0329:COTQOL>2.0.CO;2
• CANAL, R. Y MARTÍN-CILLEROS, V. (2002). Apoyo Conductual Positivo. Manual de Trabajo en Centros de Atención a Personas con Discapacidad. Junta de Castilla y León. Recuperado de: http://www.infoautismo.es/wp-content/uploads/2015/10/07._Libro.pdf.
• CARR, E. G. Y DURAND, V. M. (1985). Reducing behavior problems through functional communication training. Journal of Applied Behavior Analysis, 18 (2), 111-126. //doi.org/10.1901/jaba.1985.18-111
• COMITÉ ESPAÑOL DE REPRESENTANTES DE PERSONAS CON DISCAPACIDAD, CERMI (2011). La discapacidad en las fuentes estadísticas oficiales. Examen y propuestas de mejora. Recuperado de https://www.tarragona.cat/serveis-a-la-persona/serveissocials/observatori-social-de- la-ciutat-de-tarragona/fitxers/altres/informes-iindicadors/informe-discapacitat.
• COMITÉ ESPAÑOL DE REPRESENTANTES DE PERSONAS CON DISCAPACIDAD, CERMI (2015). Derechos humanos y discapacidad. Informe Espa-a 2015. Recuperado de http://www.cermi.es/ esES/Biblioteca/Lists/Publicaciones/Attachments/370/Informe%202015%20ONU.pdf.
• CHAPLIN, E., PASCHOS, D., O'HARA, J., MCCARTHY, J., HOLT, G., BOURAS, N. Y TSAKANIKOS, E. (2010). Mental ill-health and care pathways in adults with intellectual disability across different residential types. Research in Developmental Disabilities, 31 (2), 458-463. //doi.org/10.1016/j.ridd.2009.10.015
• COMISIÓN EUROPEA (2010). Estrategia Europea sobre Discapacidad 2010-2020. Recuperado de https://www.msssi.gob.es/ssi/discapacidad/docs/estrategia_europea_discapacidad_2010_ 2020.pdf.
• CONNEALLY, S., BOYLE, G. Y SMYTH, F. (1992). An evaluation of the use of small group homes for adults with a severe and profound mental handicap. Mental Handicap Research, 5 (2), 146-168. //doi.org/10.1111/j.1468-3148.1992.tb00042.x
• COOPER, S. A., MELVILLE, C. A. Y EINFELD, S. L. (2003). Psychiatric diagnosis, intellectual disabilities and Diagnostic Criteria for Psychiatric Disorders for Use with Adults with Learning Disabilities/Mental Retardation (DC-LD). Journal of Intellectual Disability Research, 47 (s1), 3-15. //doi.org/10.1046/j.1365-2788.47.s1.2.x
• COOPER, S. A., SMILEY, E., MORRISON, J., WILLIAMSON, A. Y ALLAN, L. (2007). Mental ill-health in adults with intellectual disabilities: prevalence and associated factors. The British Journal of Psychiatry, 190 (1), 27-35. //doi.org/10.1192/bjp.bp.106.022483
• DEPARTAMENTO DE SALUD DE REINO UNIDO (2001). Valuing people. A new strategy for learning disability for the 21st century. White Paper. Londres: HMSO.
• DEPARTAMENTO DE SALUD DE REINO UNIDO (2009). Valuing people now. A new three-year strategy for people with learning disabilities "Making it happen for everyone". Recuperado de http://webarchive.nationalarchives.gov.uk/20130107105354/http:/www.dh.gov.uk/ pro_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_093375.pdf.
• DORAN, C. M., EINFELD, S. L., MADDEN, R. H., OTIM, M., HORSTEAD, S. K., ELLIS, L. A. Y EMERSON, E. (2012). How much does intellectual disability really cost? First estimates for Australia. Journal of Intellectual and Developmental Disability, 37 (1), 42-49. //doi.org/10.3109/13668250.2011.648609
• DRAINONI, M. L., LEE-HOOD, E., TOBIAS, C., BACHMAN, S. S., ANDREW, J. Y MAISELS, L. (2006). Cross-disability experiences of barriers to health-care access consumer perspectives. Journal of Disability Policy Studies, 17 (2), 101-115. //doi.org/10.1177/10442073060170020101
• DUGGAN, A., BRADSHAW, Y. S. Y ALTMAN, W. (2010). How do I ask about your disability? An examination of interpersonal communication processes between medical students and patients with disabilities. Journal of Health Communication, 15 (3), 334-350. //doi.org/10.1080/10810731003686630
• Echeita, G. (2010). Alejandra L.S. o el dilema de la inclusión educativa en Espa-a. En P. ARNAIZ, M.ª HURTADO Y F. J. SOTO (Coords.), 25 a-os de integración escolar en Espa-a. Tecnologías e inclusión en el ámbito educativo, laboral y comunitario (pp. 1-13). Murcia: Consejería de Educación, Formación y Empleo.
• EMERSON, E. (2004). Cluster housing for adults with intellectual disabilities. Journal of Intellectual and Developmental Disability, 29, 187-197. //doi.org/10.1080/13668250412331285208
• EMERSON, E. (2009). Estimating future numbers of adults with profound multiple learning disabilities in England. Tizard Learning Disability Review, 14 (4), 49-55. //doi.org/10.1108/13595474200900040
• EMERSON, E., BAINES, S., ALLERTON, L. Y WELCH, V. (2012). Health inequalities and people with learning disabilities in the UK: 2012. Recuperado de http://www.optionsempowers. org/wp-content/uploads/2013/02/Improving-Health-and Lives-healthinequalities-andpeople-with-learning-disabilities-in-the-UK-annual report.pdf.
• EMERSON, E., ROBERTSON, J., GREGORY, N., KESSISSOGLOU, S., HATTON, C., HALLAM, A., ... Y LINEHAN, C. (2000). The quality and costs of community-based residential supports and residential campuses for people with severe and complex disabilities. Journal of Intellectual and Developmental Disability, 25 (4), 263-279. //doi.org/10.1080/13668250020019575
• ESTEBA-CASTILLO, S., RIBAS-VIDAL, N., BARÓ I DILMÉ, M. Y NOVELL, R. (2006). Envejecimiento saludable en personas con síndrome de Down y demencia: necesidad de promover programas de formación y soporte a los usuarios, familias y entidades. Revista Médica Internacional sobre el Síndrome de Down, 10 (2), 25-29. //doi.org/10.1016/S1138-2074(06)70046-X
• FEAPS (2009). Guía REINE. Reflexión Ética sobre la Inclusión en la Escuela. Madrid: FEAPS.
• FEAPS (2015). El sobreesfuerzo económico que la discapacidad intelectual o de desarrollo ocasiona en la familia en Espa-a 2014. Informe Ejecutivo. Recuperado de http://www.feaps.org/component/content/article/254-noticias-2015/2225-sobreesfuerzo-feaps.html.
• FELCE, D., JONES, E. Y LOWE, K. (2002). Active support: Planning daily activities and support for people with severe mental retardation. En S. holBurN y P. M. vietze (Eds.), Person centered planning: Research, practice, and future directions (pp. 247-269). Baltimore, MD: Paul H. Brookes.
• FELCE, D., JONES, E., LOWE, K. Y PERRY, J. (2003). Rational resourcing and productivity: Relationships among staff input, resident characteristics, and group home quality. American Journal on Mental Retardation, 108 (3), 161-172. //doi.org/10.1352/0895-8017(2003)108<0161:RRAPRA>2.0.CO;2
• FELCE, D. Y PERRY, J. (1995). Quality of life: Its definition and measurement. Research in Developmental Disabilities, 16 (1), 51-74. //doi.org/10.1016/0891-4222(94)00028-8
• FLETCHER, R. J., BARNHILL, J. Y COOPER, S. A. (2017). Diagnostic manual -Intellectual disability (DM-ID-2): A textbook of diagnosis of mental disorders in persons with intellectual disability. Kingston, NY: NADD Press.
• Giné, C. (2004). Servicios y calidad de vida para las personas con discapacidad intelectual. Siglo Cero, 35 (2), 1-13.
• GITTINS, D. y ROSE, N. (2008). An audit of adults with profound and multiple learning disabilities within a west midlands community health trust: implications for service development. British Journal of Learning Disabilities, 36 (1), 38-47. //doi.org/10.1111/j.1468-3156.2007.00480.x
• GÓMEZ, L. E., ARIAS, B., VERDUGO, M. Á., TASSE, M. J. Y BROWN, I. (2015). Operationalisation of quality of life for adults with severe disabilities. Journal of Intellectual Disability Research, 59 (10), 925-941. //doi.org/10.1111/jir.12204
• GÓMEZ, L. E., VERDUGO, M. Á., ARIAS, B., NAVAS, P. Y SCHALOCK, R. L. (2013). The development and use of Provider Profiles at the organizational and systems level. Evaluation and Program Planning, 40, 17-26. //doi.org/10.1016/j.evalprogplan.2013.05.001
• GOÑI, M. J., MARTÍNEZ, N. Y ZARDOYA, A. (2007). Apoyo conductal positivo. Algunas herramientas para afrontar las conductas difíciles. Madrid: FEAPS.
• GUZMÁN, F., MOSCOSO, M. Y TOBOSO, M. (2010). Por qué la Ley de Dependencia no constituye un instrumento para la promoción de la autonomía personal. Zerbitzuan: Gizarte zerbitzuetarako aldizkaria, 48, 43-56.
• HALL, E. (2010). Spaces of social inclusion and belonging for people with intellectual disabilities. Journal of Intellectual Disability Research, 54 (s1), 48-57. //doi.org/10.1111/j.1365-2788.2009.01237.x
• HARLAN-SIMMONS, J. E., HOLTZ, P., TODD, J. Y MOONEY, M. F. (2001). Building social relationships through valued roles: Three older adults and the community membership project. Mental retardation, 39 (3), 171-180. //doi.org/10.1352/0047-6765(2001)039<0171:BSRTVR>2.0.CO;2
• HAVERCAMP, S. M., SCANDLIN, D. Y ROTH, M. (2004). Health disparities among adults with developmental disabilities, adults with other disabilities, and adults not reporting disability in North Carolina. Public Health Reports, 119 (4), 418. //doi.org/10.1016/j.phr.2004.05.006
• Henderson, A., Lynch, S. A., Wilkinson, S. Y HUNTER, M. (2007). Adults with Down's syndrome: the prevalence of complications and health care in the community. British Journal of General Practice, 57 (534), 50-55.
• HOGG, J., REEVES, D., ROBERTS, J. Y MUDFORD, O. C. (2001). Consistency, context and confidence in judgements of affective communication in adults with profound intellectual and multiple disabilities. Journal of Intellectual Disability Research, 45 (1), 18-29. //doi.org/10.1046/j.1365-2788.2001.00289.x
• HOSTYN, I. Y MAES, B. (2009). Interaction between persons with profound intellectual and multiple disabilities and their partners: A literature review. Journal of Intellectual and Developmental Disability, 34 (4), 296-312. //doi.org/10.3109/13668250903285648
• INCLUSION INTERNATIONAL (2009). The implications of the Convention on the rights of persons with disabilities (CRPD) for education for all. Londres: Inclusion International.
• INSTITUTO NACIONAL DE ESTADÍSTICA (1999). Encuesta sobre discapacidades, deficiencias y estados de salud (EDDS). Recuperado de http://www.ine.es/prodyser/pubweb/discapa/disc- todo.pdf.
• INSTITUTO NACIONAL DE ESTADÍSTICA (2008). Encuesta de discapacidad, autonomía personal y situaciones de dependencia (edad). Recuperado de http://sid.usal.es/estadisticas_ edad2008.asp.
• INSTITUTO NACIONAL DE ESTADÍSTICA (2014). El empleo de las personas con discapacidad. Recuperado de http://www.ine.es/dyngs/INEbase/es/operacion.htm?c=Estadistica_C&cid=12 54736055502&menu=ultiDatos&idp=1254735976595.
• JANSSEN, C. G. C., SCHUENGEL, C. Y STOLK, J. (2002). Understanding challenging behaviour in people with severe and profound intellectual disability: a stress-attachment model. Journal of Intellectual Disability Research, 46 (6), 445-453. //doi.org/10.1046/j.1365-2788.2002.00430.x
• JONES, J. L. Y GALLUS, K. L. (2016). Understanding deinstitutionalization: what families value and desire in the transition to community living. Research and Practice for Persons with Severe Disabilities, 41 (2), 116-131. //doi.org/10.1177/1540796916637050
• Jones, E., Lowe, K., Brown, S., Albert, L., Saunders, C., Haake, N. Y LEIGH, H. (2013). Active support as a primary prevention strategy for challenging behaviour. International Journal of Positive Behavioural Support, 3 (1), 16-30.
• JONES, E., PERRY, J., LOWE, K., ALLEN, D., TOOGOOD, S. Y FELCE, D. (1996). Active support: A handbook for planning daily activities and support arrangements for people with learning disabilities. Booklet 1: Overview. Cardiff: Welsh Centre for Learning Disabilities Applied Research Unit.
• Knapp, M., Comas-Herrera, A., Astin, J., Beecham, J. Y PENDARIES, C. (2005). Intellectual disability, challenging behaviour and cost in care accommodation: what are the links? Health and Social Care in the Community, 13 (4), 297-306. //doi.org/10.1111/j.1365-2524.2005.00539.x
• KOBER, R. Y EGGLETON, I. R. (2005). The effect of different types of employment on quality of life. Journal of Intellectual Disability Research, 49 (10), 756-760. //doi.org/10.1111/j.1365-2788.2005.00746.x
• KOHEN, D., UPPAL, S., KHAN, S. Y VISENTIN, L. (2010). Access and barriers to educational services for Canadian children with disabilities. Recuperado de http://en.copian.ca/library/ research/ccl/access_barriers/access_barriers.pdf.
• KOZMA, A., MANSELL, J. Y BEADLE-BROWN, J. (2009). Outcomes in different residential settings for people with intellectual disability: a systematic review. American Journal on Intellectual and Developmental Disabilities, 114 (3), 193-222. //doi.org/10.1352/1944-7558-114.3.193
• KRAHN, G. L., HAMMOND, L. Y TURNER, A. (2006). A cascade of disparities: health and health care access for people with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 12 (1), 70-82. //doi.org/10.1002/mrdd.20098
• KREUGER, L., VAN EXEL, J. Y NIEBOER, A. (2008). Needs of persons with severe intellectual disabilities: a Q-methodological study of clients with severe behavioural disorders and severe intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 21 (5), 466-476. //doi.org/10.1111/j.1468-3148.2007.00408.x
• KULTGEN, P., HARLAN-SIMMONS, J. Y TODD, J. (2000). Community membership. En M. jaNicKi y E. aNsello (Eds.), Community supports for aging adults with lifelong disabilities (pp. 153166). Baltimore: Brookes.
• LAKIN, K. C., LARSON, S. A. Y KIM, S. (2011). Behavioral outcomes of deinstitutionalization for people with intellectual and/or developmental disabilities: Third decennial review of US studies, 1977-2010. Minneapolis, MN: Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.
• LANCIONI, G. E., SINGH, N. N., O'REILLY, M. F., OLIVA, D. Y BASILI, G. (2005). An overview of research on increasing indices of happiness of people with severe/profound intellectual and multiple disabilities. Disability and Rehabilitation, 27 (3), 83-93. //doi.org/10.1080/09638280400007406
• LARSON, S. A., HALLAS-MUCHOW, L., AIKEN, F., HEWITT, A., PETTINGELL, S., ANDERSON, L. L., ... Y SMITH, D. (2014). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2012. Minneapolis: Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.
• LARSON, S. A., SALMI, P., SMITH, D., ANDERSON, L. Y HEWITT, A. S. (2013). Residential Services for Persons with Intellectual or Developmental Disabilities: Status and trends through 2011. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.
• LEY 39/2006, de 14 de diciembre, de Promoción de la Autonomía Personal y Atención a las personas en situación de dependencia. BOE n.º 299, 15/12/2006, pp. 44142-44156.
• Luckasson, R. (2004). Defining intellectual disability: The quest for meaning in words, science, and human relationships. Journal of Intellectual Disability Research, 48, 285.
• LUCKASSON, R., BORTHWICK-DUFFY, S., BUNTINX, W. H., COULTER, D. L., CRAIG, E. M. P., REEVE, A., ... Y TASSÉ, M. J. (2002). Mental retardation: Definition, classification, and systems of supports. American Association on Mental Retardation.
• MAES, B., LAMBRECHTS, G., HOSTYN, I. Y PETRY, K. (2007). Quality-enhancing interventions for people with profound intellectual and multiple disabilities: A review of the empirical research literature. Journal of Intellectual and Developmental Disability, 32 (3), 163-178. //doi.org/10.1080/13668250701549427
• MANSELL, J. (1994). Specialized group homes for persons with severe or profound mental retardation and serious problem behaviour in England. Research in Developmental Disabilities, 15 (5), 371-388. //doi.org/10.1016/0891-4222(94)90023-X
• MANSELL, J. (2006). Deinstitutionalisation and community living: progress, problems and priorities. Journal of Intellectual and Developmental Disability, 31, 65-76. //doi.org/10.1080/13668250600686726
• MANSELL, J. (2010). Raising our sights: services for adults with profound intellectual and multiple disabilities. Recuperado de https://www.mencap.org.uk/sites/default/files/2016-06/ Raising_our_Sights_report.pdf.
• MANSELL, J. Y BEADLE-BROWN, J. (2012). Active support: Enabling and empowering people with intellectual disabilities. Londres: Jessica Kingsley Publishers.
• MANSELL, J., KNAPP, M., BEADLE-BROWN, J. Y BEECHAM, J. (2007). Deinstitutionalisation and community living-Outcomes and costs: Report of a European study (Vol. 2: main report). Canterbury: Tizard Centre, University of Kent.
• MARTÍN-CILLEROS, V., caNal, R., Bohórquez, D. y goNzález-garcía, C. (2010). Apoyo conductual: ¿Qué es la conducta problemática? Junta de Comunidades de Castilla-La Mancha, Consejería de Salud y Bienestar Social e INICO.
• MARTÍN-CILLEROS, V., CANAL, R. Y GONZÁLEZ-GARCÍA, C. (2010). Apoyo conductual: cómo actuar ante la conducta problemática. Junta de Comunidades de Castilla-La Mancha, Consejería de Salud y Bienestar Social e INICO.
• MCCONKEY, R. (2007). Variations in the social inclusion of people with intellectual disabilities in supported living schemes and residential settings. Journal of Intellectual Disability Research, 51 (3), 207-217. //doi.org/10.1111/j.1365-2788.2006.00858.x
• MINIHAN, P. M., ROBEY, K. L., LONG-BELLIL, L. M., GRAHAM, C. L., HAHN, J. E., WOODARD, //doi.org/10.1097/ACM.0b013e3182264a25
• MINISTERIO DE EDUCACIÓN, CULTURA Y DEPORTE (2015). Panorama de la educación. Indicadores de la OCDE 2015. Recuperado de http://www.mecd.gob.es/dctm/inee/internacional/ panorama-de-la-educacion-2015.-informe-espanol.pdf?documentId=0901e72b81ee9fa3.
• MIRENDA, P. (2014). Revisiting the mosaic of supports required for including people with severe intellectual or developmental disabilities in their communities. Augmentative and Alternative Communication, 30 (1), 19-27. //doi.org/10.3109/07434618.2013.875590
• MOSS, S., EMERSON, E., KIERNAN, C., TURNER, S., HATTON, C. Y ALBORZ, A. (2000). Psychiatric symptoms in adults with learning disability and challenging behaviour. The British Journal of Psychiatry, 177 (5), 452-456. //doi.org/10.1192/bjp.177.5.452
• MURPHY, N. A. Y CARBONE, P. S. (2011). Parent-provider-community partnerships: optimizing outcomes for children with disabilities. Pediatrics, 128 (4), 795-802. //doi.org/10.1542/peds.2011-1467
• MURPHY, E., CLEGG, J. Y ALMACK, K. (2011). Constructing adulthood in discussions about the futures of young people with moderate-profound intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 24 (1), 61-73. //doi.org/10.1111/j.1468-3148.2010.00565.x
• NACIONES UNIDAS (2006). Convention on the rights of persons with disabilities. Recuperado de: http://www.un.org/disabilities /convention/ conventionfull.shtml.
• NAKKEN, H. Y VLASKAMP, C. (2007). A need for a taxonomy for profound intellectual and multiple disabilities. Journal of Policy and Practice in intellectual Disabilities, 4 (2), 83-87. //doi.org/10.1111/j.1741-1130.2007.00104.x
• Navas, P., Gómez, L. E. Y VERDUGO, M. Á. (2017). En M. Wehmeyer (Ed.), The Praeger International Handbook of Special Education. Santa Bárbara, California: ABCCLIO (pp. 227-238).
• Navas, P., Gómez, L. E., Verdugo, M. Á. Y SCHALOCK, R. L. (2012). Derechos de las personas con discapacidad intelectual: Implicaciones de la Convención de Naciones Unidas. Siglo Cero, 43, 7-28
• NAVAS, P., UHLMANN, S. Y BERÁSTEGUI, A. (2014). Envejecimiento activo y discapacidad intelectual. Ministerio de Educación, Cultura y Deporte.
• Neely-Barnes, S., Marcenko, M. Y WEBER, L. (2008). Does choice influence quality of life for people with mild intellectual disabilities? Intellectual and Developmental Disabilities, 46 (1), 12-26. //doi.org/10.1352/0047-6765(2008)46[12:DCIQOL]2.0.CO;2
• NETTEN, A., BEADLE-BROWN, J., TRUKESCHITZ, B., TOWERS, A., WELCH, E., FORDER, J., ... y ALDEN, E. (2010). Measuring the outcomes of care homes: Final report. Recuperado de www. pssru.ac.uk/pdf/dp2696_2.pdf.
• NOLAN, M., DAVIES, N. Y GRANT, G. (2001). Working with older people and their families. Londres: McGraw-Hill Education.
• NOVELL, R., RUEDA, P. Y SALVADOR-CARULLA, L. (2003). Salud mental y alteraciones de la conducta en las personas con discapacidad intelectual. Guía práctica para técnicos y cuidadores. Recuperado de http://repositoriocdpd.net:8080/handle/123456789/955.
• O'BRIEN, P., THESING, A., TUCK, B. Y CAPIE, A. (2001). Perceptions of change, advantage and quality of life for people with intellectual disability who left a long stay institution to live in the community. Journal of Intellectual and Developmental Disability, 26 (1), 67-82. //doi.org/10.1080/13668250020032778
• ORGANIZACIÓN MUNDIAL DE LA SALUD (2011). Informe mundial sobre la discapacidad. Ginebra: Autor. Recuperado de http://www.who.int/disabilities/world_report/2011/es/.
• Petry, K. Y MAES, B. (2007). Description of the support needs of people with profound multiple disabilities using the 2002 AAMR system: An overview of literature. Education and Training in developmental Disabilities, 42 (2), 130-143.
• PETRY, K., MAES, B. Y VLASKAMP, C. (2005). Domains of quality of life of people with profound multiple disabilities: The perspective of parents and direct support staff. Journal of Applied Research in Intellectual Disabilities, 18 (1), 35-46. //doi.org/10.1111/j.1468-3148.2004.00209.x
• PETRY, K., MAES, B. Y VLASKAMP, C. (2009). Measuring the quality of life of people with profound multiple disabilities using the QOL-PMD: First results. Research in Developmental Disabilities, 30 (6), 1394-1405. //doi.org/10.1016/j.ridd.2009.06.007
• PHARR, J. R. Y BUNGUM, T. (2012). Health disparities experienced by people with disabilities in the United States: A behavioral risk factor surveillance system study. Global Journal of Health Science, 4 (6), 99-108. //doi.org/10.5539/gjhs.v4n6p99
• PMLD NETWORK (2003). Valuing People with Profound and Multiple Learning Disabilities (pmld). Recuperado de http://www.pmldnetwork.org/resources/Valuing%20people%20 with%20profound%20and%20multiple%20learning%20disabilities.pdf.
• POPPES, P., VAN DER PUTTEN, A. J. J. Y VLASKAMP, C. (2010). Frequency and severity of challenging behaviour in people with profound intellectual and multiple disabilities. Research in Developmental Disabilities, 31 (6), 1269-1275. //doi.org/10.1016/j.ridd.2010.07.017
• REISS, S. (1993). Mental illness in persons with mental retardation. Recuperado de: www. plboard.com/4agency/training/032306/032306.pdf.
• Reiss, S., Levitan, G. W. Y SZYSZKO, J. (1982). Emotional disturbance and mental retardation: diagnostic overshadowing. American Journal of Mental Deficiency, 86 (6), 567-574.
• Robertson, J., Emerson, E., Elliott, J. Y HATTON, C. (2007). El impacto de la planificación centrada en la persona en las personas con discapacidad intelectual en Inglaterra: un resumen de hallazgos. Siglo Cero, 38, 223, 5-24.
• ROYAL COLLEGE OF PSYCHIATRISTS (2001). DC-LD: Diagnostic criteria for psychiatric disorders for use with adults with learning disabilities/mental retardation, vol. 48. Londres, Reino Unido: Royal College of Psychiatrists.
• Rush, A. J. Y FRANCES, A. (2000). Expert consensus guideline series: Treatment of psychiatric and behavioural problems in mental retardation. American Journal on Mental Retardation, 105, 159-228.
• Salvador-Carulla, L. Y NOVELL, R. (2003). Problemas de conducta en el retraso mental. Siglo Cero, 34 (2), 78-86.
• SAMUEL, J. Y PRITCHARD, M. (2001). The ignored minority: meeting the needs of people with profound learning disability. Tizard Learning Disability Review, 6 (2), 34-44. //doi.org/10.1108/13595474200100017
• SCHALOCK, R. L., BORTHWICK-DUFFY, S. A., BRADLEY, V. J., BUNTINX, W. H., COULTER, D. L., CRAIG, E. M., ... Y SHOGREN, K. A. (2010). Intellectual disability: Definition, classification, and systems of supports. Washington, DC: American Association on Intellectual and Developmental Disabilities.
• Schalock, R. L., Lemanowicz, J. A., Conroy, J. W. Y FEINSTEIN, C. S. (1994). A multivariate investigative study of the correlates of quality of life. Journal on Developmental Disabilities, 3 (2), 59-73.
• SCHALOCK, R. L. Y VERDUGO, M. Á. (2002). Handbook on quality of life for human service practitioners. Washington, DC: American Association on Mental Retardation.
• SCHEEPERS, M., KERR, M., O'HARA, D., BAINBRIDGE, D., COOPER, S. A., DAVIS, R., ... y WEHMEYER, M. (2005). Reducing health disparity in people with intellectual disabilities: A report from health issues special interest research group of the International Association for the Scientific Study of Intellectual Disabilities. Journal of Policy and Practice in Intellectual Disabilities, 2 (3-4), 249-255. //doi.org/10.1111/j.1741-1130.2005.00037.x
• Seoane, J. A. (2011). La convención de la ONU sobre los derechos de las personas con discapacidad: perspectiva jurídica. Siglo Cero, 42 (237), 21-32.
• SNELL, M. E., BRADY, N., MCLEAN, L., OGLETTREE, B. T., SIEGE, E., SYLVESTER, L., … Y SEVCIK, R. (2010). Twenty years of communication intervention research with individuals who have severe intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 115 (5), 364-380. //doi.org/10.1352/1944-7558-115-5.364
• STANCLIFFE, R. J., HARMAN, A. D., TOOGOOD, S. Y MCVILLY, K. R. (2005). Australian implementation and evaluation of active support. Recuperado de https://www.adhc.nsw.gov. au/__data/assets/file/0008/228176/2_AustralianImplementationandEvaluationofActiveSuppo.pdf.
• STANCLIFFE, R. J., JONES, E., MANSELL, J. Y LOWE, K. (2008). Active support: A critical review and commentary. Journal of Intellectual and Developmental Disability, 33 (3), 196-214. STANCLIFFE, R. J. Y KEANE, S. (2000). Outcomes and costs of community living: A matched comparison of group homes and semi-independent living. Journal of Intellectual and Developmental Disability, 25 (4), 281-305. //doi.org/10.1080/13668250020019584
• STANCLIFFE, R. J., LARSON, S., AUERBACH, K., ENGLER, J., TAUB, S. Y LAKIN, E. C. (2010). Individuals with intellectual disabilities and augmentative and alternative communication: Analysis of survey data on uptake of aided AAC, and loneliness experiences. Augmentative and Alternative Communication, 26, 87-96. //doi.org/10.3109/07434618.2010.481564
• Stodden, R. A. y Whelley, T. (2004). Postsecondary education and persons with intellectual disabilities: An introduction. Education and Training in Developmental Disabilities, 39 (1), 6-15. SUTHERLAND, G., COUCH, M. A. e IACONO, T. (2002). Health issues for adults with developmental disability. Research in Developmental Disabilities, 23 (6), 422-445.
• Tassé, M. J. (2012). Intellectual disability. En D. J. LYNN, H. B. NEWTON Y A. D. RAE-GRANT (Eds.), The 5-Minute Neurology Consult (2.ª ed.) (pp. 248-249). Filadelfia: Lippincott, Williams and Wilkins.
• TASSÉ, M. J., BERTELLI, M., KATES, W., SIMON, E. Y NAVAS, P. (2017). Intellectual Disability (Intellectual Disability Disorder). En R. FLETCHER, S. A. COOPER Y J. BARNHILL (Eds.), Diagnostic Manual Intellectual Disability (2nd edition) (pp. 75-90). Nueva York: NADD Press.
• TAYLOR, H., KRANE, D. Y ORKIS, K. (2010). The ADA, 20 years later. Nueva York: Harris Interactive.
• THORPE, L., DAVIDSON, P. Y JANICKI, M. P. (2000). Healthy Ageing Adults with Intellectual Disabilities: Biobehavioural Issues. Ginebra, Suiza: Organización Mundial de la Salud.
• VAN DER PUTTEN, A. Y VLASKAMP, C. (2011). Day services for people with profound intellectual and multiple disabilities: An analysis of thematically organized activities. Journal of Policy and Practice in Intellectual Disabilities, 8 (1), 10-17. //doi.org/10.1111/j.1741-1130.2011.00282.x
• Verdugo, M. Á. (2011). Implicaciones de la Convención de la ONU (2006) en la educación de los alumnos con discapacidad. CEE Participación Educativa, 18, 25-34.
• VERDUGO, M. Á. (2016). Comunicado sobre la situación de la inclusión educativa en Espa-a. Recuperado de http://sid.usal.es/noticias/discapacidad/56067/1-1/comunicado-sobre-lasi- tuacion-de-la-inclusion-educativa-en-espana.aspx.
• VERDUGO, M. Á., GÓMEZ, L. E., arias, B., Navas, P. y schalocK, R. L. (2014). Measuring quality of life in people with intellectual and multiple disabilities: Validation of the San Martín scale. Research in Developmental Disabilities, 35 (1), 75-86. //doi.org/10.1016/j.ridd.2013.10.025
• Verdugo, M. Á., Gómez, L. E., arias, B., saNtaMaría, M., Navallas, E., ferNáNdez, S. y hierro, I. (2013). Evaluación de la calidad de vida en personas con discapacidades significativas: la escala San Martín. Siglo Cero, 44 (248), 6-20.
• VERDUGO, M. Á. Y NAVAS, P. (2016). Derechos y calidad de vida de las personas con discapacidad intelectual y mayores necesidades de apoyo: informe ejecutivo. Plena Inclusión Espa-a e INICO. Recuperado de http://www.plenainclusion.org/informate/publicaciones/todos- somos-todos-derechosy-calidadde-vidade-laspersonas-con.
• Verdugo, M. Á. Y RODRÍGUEZ-AGUILELLA, A. (2008). Valoración de la inclusión educativa desde diferentes perspectivas. Siglo Cero, 39 (228), 5-25.
• Verdugo, M. Á. Y RODRÍGUEZ-AGUILELLA, A. (2012). La inclusión educativa en Espa-a desde la perspectiva de alumnos con discapacidad intelectual, de familias y de profesionales. Revista de Educación, 358, 450-470.
• VLASKAMP, C., HIEMSTRA, S. J., WIERSMA, L. A. Y ZIJLSTRA, B. J. H. (2007). Extent, duration, and content of day services' activities for persons with profound intellectual and multiple disabilities. Journal of Policy and Practice in Intellectual Disabilities, 4, 152-159. //doi.org/10.1111/j.1741-1130.2007.00112.x
• VLASKAMP, C. Y VAN DER PUTTEN, A. (2009). Focus on interaction: The use of an individualized support program for persons with profound intellectual and multiple disabilities. Research in Developmental Disabilities, 30 (5), 873-883. //doi.org/10.1016/j.ridd.2008.12.005
• VOS, P., DE COCK, P., PETRY, K., VAN DEN NOORTGATE, W. Y MAES, B. (2010). What makes them feel like they do? Investigating the subjective well-being in people with severe and profound disabilities. Research in Developmental Disabilities, 31 (6), 1623-1632. //doi.org/10.1016/j.ridd.2010.04.021
• WEHMEYER, M. L. Y BOLDING, N. (2001). Enhanced self-determination of adults with intellectual disability as an outcome of moving to community-based work or living environments. Journal of Intellectual Disability Research, 45 (5), 371-383. //doi.org/10.1046/j.1365-2788.2001.00342.x
• YOUNG, L. Y ASHMAN, A. F. (2004). Deinstitutionalization for older adults with severe mental retardation: Results from Australia. American Journal on Mental Retardation, 109 (5), 397-412. //doi.org/10.1352/0895-8017(2004)109<397:DFOAWS>2.0.CO;2