MONOGRÁFICO 4: El impacto sobre la actividad de las entidades de afectados y familiares de enfermedades raras durante el confinamiento por COVID-19 en España
- Jose Manuel Guerra 1
- Gema Esteban Bueno 2
- Juan R. Coca 3
- 1 Departamento de Psicología Social. Universidad de Sevilla
- 2 Unidad de gestión clínica Almería Periferia- Distrito Sanitario Almería. Servicio Andaluz de Salud
- 3 Unidad de investigación social en salud y enfermedades raras. Departamento de Sociología y Trabajo Social. Universidad de Valladolid
ISSN: 1132-192X
Year of publication: 2021
Issue: 42
Pages: 95-111
Type: Article
More publications in: Acciones e investigaciones sociales
Abstract
The Covid-19 pandemic has evolved into a health crisis with farreaching repercussions. Healthcare for rare diseases (RD) has been affected by the changes deriving from the measures put in place for such management. In this article we analyse the impact of a strict lockdown on the services and activity of those entities associated with such diseases. A total of 81 RD entities in Spain participated in the study. The results show a negative effect on the number of activities and services performed by these entities during this period of time, both as a consequence of eliminating such activities and services and also on account of the changes undertaken in order to carry them out.