Estado actual de investigación en parálisis cerebral y envejecimientorevisión sistemática

  1. Patricia Solís García 1
  2. Sara Real Castelao 2
  1. 1 Universidad Internacional de La Rioja
    info

    Universidad Internacional de La Rioja

    Logroño, España

    ROR https://ror.org/029gnnp81

  2. 2 Centro Asociado UNED Ponferrada
Revista:
Revista Española de Discapacidad (REDIS)

ISSN: 2340-5104

Año de publicación: 2019

Volumen: 7

Número: 2

Páginas: 103-122

Tipo: Artículo

DOI: 10.5569/2340-5104.07.02.06 DIALNET GOOGLE SCHOLAR lock_openDialnet editor

Otras publicaciones en: Revista Española de Discapacidad (REDIS)

Resumen

El objetivo de la presente revisión es analizar las publicaciones en el área de paráli-sis cerebral y envejecimiento, respecto a tipo y volumen de publicaciones, metodo-logía, áreas temáticas y edad de corte de la muestra. La importancia de la temática se deriva del incremento de la esperanza de vida de este colectivo y su aumento demográfico, que conlleva a que surja un nuevo colectivo con demandas específi-cas a las que la comunidad científica debe dar respuesta. Se plantea una búsqueda en las principales bases de datos y un análisis siguiendo el método PRISMA, con el fin de que la revisión sea sistemática y replicable. Tras el análisis de las publica-ciones se destaca la predominancia de estudios empíricos del área médica, debi-lidades metodológicas comunes al área de investigación y la necesidad de realizar investigaciones longitudinales y de corte psicosocial que permitan dar respuesta de manera integral.

Referencias bibliográficas

  • Alcedo, M. Á. et al. (2017): “Personas con discapacidad intelectual que envejecen: evaluación de necesidades percibidas”. International Journal of Clinical and Health Psychology, 17 (1): 38-45.
  • Andersson, C. y Mattsson, E. (2001): “Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion”. Developmental Medicine and Child Neurology, 43 (2): 76-82.
  • Badía-Corbella, M. (2007): “Tendencias actuales de investigación ante el nuevo concepto de parálisis cerebral”. Siglo Cero: Revista Española sobre Discapacidad Intelectual, 38 (3): 25-38.
  • Badía-Corbella, M. et al. (2013): “Calidad de vida en los pacientes con parálisis cerebral en proceso de envejecimiento”. Rehabilitación, 47 (4): 194-199. doi:10.1016/j.rh.2013.02.002.
  • Balandin, S. et al. (2006): “Assessing the loneliness of older people with cerebral palsy”. Disability and Rehabilitation, 28 (8): 469–479. doi:10.1080/09638280500211759.
  • Balandin, S. et al. (2009): “Understanding mealtime changes for adults with cerebral palsy and the implications for support services”. Journal of Intellectual & Developmental Disability, 34 (3): 197–206. doi:10.1080/13668250903074489.
  • Ballin, L. y Balandin, S. (2007): “An exploration of loneliness: Communication and the social networks of older people with cerebral palsy”. Journal of Intellectual & Developmental Disability, 32 (4): 315–326. doi:10.1080/13668250701689256.
  • Beadle-Brown, J. et al. (2015): “Observing practice leadership in intellectual and developmental disability services”. Journal of Intellectual Disability Research, 59: 1081-1093. doi:10.1111/jir.12208.
  • Benner, J. L. et al. (2017): “Long-Term Deterioration of Perceived Health and Functioning in Adults with Cerebral Palsy”. Archives of Physical Medicine and Rehabilitation, 98 (11): 2196–2205. doi:10.1016/j.apmr.2017.03.013.
  • Berjano, E. y García, E. (2010): Discapacidad intelectual y envejecimiento: Un problema social del siglo XXI. Madrid: FEAPS.
  • Bottos, M. et al. (2001): “Functional status of adults with cerebral palsy and implications for treatment of children”. Developmental Medicine and Child Neurology, 43 (08): 516-528. doi:10.1017/s0012162201000950.
  • Brunton, L. K. y Rice, C. L. (2012): “Fatigue in cerebral palsy: A critical review”. Developmental Neurorehabilitation, 15 (1): 54–62. doi:10.3109/17518423.2011.629633.
  • Carmeli, E. et al. (2004): “A comparison between older persons with Down syndrome and a control group: clinical characteristics, functional status and sensorimotor function”. Down’s syndrome, research and practice: the journal of the Sarah Duffen Centre, 9 (1): 17-24 (en línea). , acceso 22 de noviembre de 2019.
  • Cans, C. et al. (2000): “Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers”. Developmental medicine and child neurology, 42 (12): 816-824. https://doi.org/10.1017/S0012162200001511.
  • Chadwick, D. D. y Jolliffe, J. (2009): “A descriptive investigation of dysphagia in adults with intellectual disabilities”. Journal of Intellectual Disability Research, 53 (1): 29–43. doi:10.1111/j.1365-2788.2008.01115.x.
  • Cleaver, S. et al. (2008): “Relationship Between Mobility Limitations and the Places Where Older Adults with Intellectual Disabilities Live”. Journal of Policy and Practice in Intellectual Disabilities, 5 (4): 253–258. doi:10.1111/j.1741-1130.2008.00186.x.
  • Coppus, A. M. W. (2013): “People with intellectual disability: What do we know about adulthood and life expectancy?”. Developmental Disabilities Research Reviews, 18 (1): 6–16. doi:10.1002/ddrr.1123.
  • Coyle, C. E. y Mutchler, J. E. (2017): “Aging with Disability: Advancement of a Cross-Disciplinary Research Network”. Research on Aging, 39 (6): 683-692.
  • Coyle, C. et al. (2016): “The role of aging and disability resource centers in serving adults aging with intelectual disabilities and their families: fndings from seven states”. Journal of Aging and Social Policy, 28 (1): 1-14.
  • Dark, L. J. et al. (2016): “Communication changes experienced by adults with cerebral palsy as they age”. International Journal of Speech-Language Pathology, 18 (6): 521–532. doi:10.3109/17549507.2016.1143976.
  • Del Barrio, J. S. et al. (2006): “Retos del envejecimiento de las personas con discapacidad intelectual”. Revista INFAD de Psicología, 1 (2): 47-56. doi.org/10.17060/ijodaep.2016.n2.v1.559.
  • Fernández-Ríos, L. y Buela-Casal, G. (2009): “Standards for the preparation and writing of Psychology review articles”. International Journal of Clinical and Health Psychology, 9 (2): 329-344.
  • Frisch, D. y Msall, M. E. (2013): “Health, functioning, and participation of adolescents and adults with cerebral palsy: A review of outcomes research”. Developmental Disabilities Research Reviews, 18 (1): 84–94. doi:10.1002/ddrr.1131.
  • Galambos, N. L. et al. (2007): “Subjective Age in the Transition to Adulthood for Persons with and without Motor Disabilities”. Journal of Youth and Adolescence, 36 (6): 825–834. doi:10.1007/s10964-007-9190-6.
  • González-Alonso, M. Y. et al. (2017): “Envejecimiento en parálisis cerebral, un reto en investigación e innovación: revisión sistemática”. Universitas Psychologica, 16 (3): 1-15. doi.org/10.11144/Javeriana.upsy16-3.epcr.
  • Goodwin, D. L. y Compton, S. G. (2004): “Physical Activity Experiences of Women Aging with Disabilities”. Adapted Physical Activity Quarterly, 21 (2): 122–138. doi:10.1123/apaq.21.2.122.
  • Haak, P. et al. (2009): “Cerebral palsy and aging”. Developmental Medicine & Child Neurology, 51:16–23. doi:10.1111/j.1469-8749.2009.03428.x.
  • Haddad, A. et al. (2007): “A pharmacist’s introduction to the effects of aging on patients with cerebral palsy”. The Consultant Pharmacist®, 22 (8): 669-674. doi.org/10.4140/tcp.n.2007.669.
  • Heller, T. et al. (2002): “Determinants of exercise in adults with cerebral palsy”. Public Health Nursing, 19 (3): 223-231. doi.org/10.1046/j.0737-1209.2002.19311.x.
  • Hemsley, B. et al. (2007a): “Family Caregivers Discuss Roles and Needs in Supporting Adults with Cerebral Palsy and Complex Communication Needs in the Hospital Setting”. Journal of Developmental and Physical Disabilities, 20 (3): 257–274. doi:10.1007/s10882-007-9095-z.
  • Hemsley, B. et al. (2007b): “Older Unpaid Carers’ Experiences Supporting Adults with Cerebral Palsy and Complex Communication Needs in Hospital”. Journal of Developmental and Physical Disabilities, 19 (2): 115–124. doi:10.1007/s10882-007-9040-1.
  • Horsman, M. et al. (2010): “Growing Older With Cerebral Palsy”. Pediatric Physical Therapy, 22 (3): 296–303. doi:10.1097/pep.0b013e3181eabc0f.
  • Horstmann, H. M. et al. (2009): “Orthopaedic issues in the musculoskeletal care of adults with cerebral palsy”. Developmental Medicine & Child Neurology, 51: 99-105. doi.org/10.1111/j.1469-8749.2009.03417.x.
  • Instituto Nacional de Estadística (INE) (2008). Encuesta sobre discapacidad, autonomía personal y situaciones de dependencia (en línea). , acceso el 10 de junio de 2018.
  • Jahoda, A. et al. (2015): “A feasibility study of behavioural activation for depressive symptoms in adults with intellectual disabilities”. Journal of Intellectual Disability Research, 59: 1010-1021. doi:10.1111/jir.12175.
  • Jones, G. C. (2009): “Aging with cerebral palsy and other disabilities: personal reflections and recommendations”. Developmental Medicine & Child Neurology, 51: 12-15.
  • Judge, J. et al. (2010): “Activity, aging, and retirement: The views of a group of Scottish people with intellectual disabilities”. Journal of Policy and Practice in Intellectual Disabilities, 7: 295-301. doi:10.1177/0164027504271349.
  • Klingbeil, H. et al. (2004): “Aging with a disability”. Archives of physical medicine and rehabilitation, 85: 68-73. doi:10.1016/j.apmr.2004.03.014.
  • Lifshitz, H. et al. (2008): “Health status and ADL functioning of older persons with intelectual disability: Community residence versus residential care centers”. Research in Developmental Disabilities, 29 (4): 301–315. doi:10.1016/j.ridd.2007.06.005.
  • Low Choy, N. et al. (2003): “The efcacy of a work-station intervention programme to improve functional ability and flexibility in ageing clients with Cerebral Palsy: a pilot study”. Disability and Rehabilitation, 25 (21): 1201–1207. doi:10.1080/09638280310001599998.
  • Martin, L. et al. (2017): “The Power of Population Health Data on Aging and Intellectual and Developmental Disabilities: Reactions of Knowledge Users”. Journal of Policy and Practice in Intellectual Disabilities, 14: 268-278. doi.org/10.1177/1744629511413506.
  • McCallion, P. et al. (2019): “Epidemiological Issues in Intellectual Disability and Aging Research”, en Prasher V. y Janicki M. (eds.): Physical Health of Adults with Intellectual and Developmental Disabilities . Birmingham: Springer. doi.org/10.1007/978-3-319-90083-4_5.
  • McPhee, P. G. et al. (2016): “Fatigue and its relationship with physical activity, age, and body composition in adults with cerebral palsy”. Developmental Medicine & Child Neurology, 59 (4): 367–373. doi:10.1111/dmcn.13306.
  • Michelsen, S. I. et al. (2006): “Social integration of adults with cerebral palsy”. Developmental Medicine & Child Neurology, 48 (08): 643. doi:10.1017/s0012162206001368.
  • Mitchell, J. M. et al. (2006): “The Effects of Aging on Employment of People With and Without Disabilities”. Rehabilitation Counseling Bulletin, 49 (3): 157–165. doi:10.1177/00343552060490030301.
  • Moll, L. R. y Cott, C. A. (2012): “The paradox of normalization through rehabilitation: growing up and growing older with cerebral palsy”. Disability and Rehabilitation, 35 (15): 1276–1283. doi:10.3109/09638288.2012.726689.
  • Morgan, P. et al. (2014): “Health service experiences to address mobility decline in ambulant adults ageing with cerebral palsy”. Journal of Intellectual & Developmental Disability, 39 (3): 282–289. doi:10.3109/13668250.2014.927841.
  • Morgan, P. y McGinley, J. (2014): “Gait function and decline in adults with cerebral palsy: a systematic review”. Disability and Rehabilitation, 36 (1): 1–9. doi:10.3109/09638288.2013.775359.
  • Morgan, P. et al. (2015): “Perceived cause, environmental factors, and consequences of falls in adults with cerebral palsy: a preliminary mixed methods study”. Rehabilitation research and practice, 2015. doi.org/10.1155/2015/196395.
  • Moro, T. T. et al. (2017): “Agency, social and healthcare supports for adults with intelectual disability at the end of life in out‐of‐home, non‐institutional community residences in Western nations: A literature review”. Journal of Applied Research in Intellectual Disabilities. 30 (6):1045–1056. doi.org/10.1111/jar.12374.
  • Moher, D. et al. (2009): “Preferred Reporting Items for Systematic Reviews and MetaAnalyses: The PRISMA Statement”. PLoS Medicine, 6: e1000097. doi:10.1371/journal.pmed1000097.
  • Mudge, S. et al. (2016): “Ageing with cerebral palsy; what are the health experiences of adults with cerebral palsy? A qualitative study”. BMJ Open, 6 (10): e012551. doi:10.1136/bmjopen-2016-012551.
  • Ng, N. et al. (2015): “Prevalence of older people with intellectual disability in Sweden: a spatial epidemiological analysis”. Journal of Intellectual Disability Research, 59: 1155-1167. doi:10.1111/jir.12219.
  • OMS (2001): Clasifcación Internacional del Funcionamiento de la Discapacidad y de la Salud (CIF). Madrid: IMSERSO.
  • Perestelo-Pérez, L. (2013): “Standards on how to develop and report systematic reviews in Psychology and Health”. International Journal of Clinical and Health Psychology, 13 (1): 49-57. doi.org/10.1016/S1697-2600(13)70007-3Get.
  • Peterson, M. D. et al. (2013): “Chronic disease risk among adults with cerebral palsy: the role of premature sarcopenia, obesity and sedentary behaviour”. Obesity Reviews, 14 (2): 171–182. doi:10.1111/j.1467-789x.2012.01052.x.
  • Peterson, M. D. et al. (2012): “Secondary muscle pathology and metabolic dysregulation in adults with cerebral palsy”. American Journal of Physiology-Endocrinology and Metabolism, 303 (9): E1085–E1093. doi:10.1152/ajpendo.00338.2012.
  • Petretto, D. R. et al. (2019): “Aging and disability: the need of a bridge to promote wellbeing”. Gerontology & Geriatric Medicine, 4 (5): 1-6. doi: 10.19080 / OAJGGM.2019.04.555648.
  • Platt, M. J. (2016): “Counting cases of cerebral palsy”. Developmental Medicine & Child Neurology, 59 (3): 243. doi:10.1111/dmcn.13304.
  • Pueyo-Benito, R. y Vendrell-Gómez, P. (2002): “Neuropsicología de la Parálisis Cerebral”. Revista de Neurología, 34: 1080-1087.
  • Robaina, G. R. et al. (2007): “Defnición y clasifcación de la parálisis cerebral: ¿un problema ya resuelto?”. Revista de Neurología, 45 (2): 110-117. doi.org/10.33588/rn.4502.2006595.
  • Rosenbaum, P. et al. (2007): “A report: the defnition and classifcation of cerebral palsy”. Dev Med Child Neurol, Suppl. 109: 8–14.
  • Sandström, K. et al. (2009): “Prerequisites for carrying out physiotherapy and physical activity – experiences from adults with cerebral palsy”. Disability and Rehabilitation, 31 (3): 161–169. doi:10.1080/09638280701850934.
  • Schepens, H. R. et al. (2017): “What Indicates and Determines Quality of Life for Elderly People with Intellectual Disabilities?”. Journal of Mental Health Research in Intellectual Disabilities, 10: 46-46. doi.org/10.1111/jar.12559.
  • Shortland, A. (2009): “Muscle defcits in cerebral palsy and early loss of mobility: can we learn something from our elders?”. Developmental Medicine & Child Neurology, 51: 59-63. doi.org/10.1111/j.1469-8749.2009.03434.x.
  • Svien, L. R. et al. (2008): “Issues in aging with cerebral palsy”. Topics in Geriatric Rehabilitation, 24 (1): 26-40. doi:10.1111 / j.1469-8749.2009.03428.x.
  • Strydom, A. et al. (2019): “Physical Health and Clinical Phenotypes”, en Prasher, V. y Janicki, M. (eds.): Physical Health of Adults with Intellectual and Developmental Disabilities. Birmingham: Springer. doi.org/10.1007/978-3-319-90083-4_5.
  • Tarsuslu, T. y Livanelioglu, A. (2010): “Relationship between quality of life and functional status of young adults and adults with cerebral palsy”. Disability and Rehabilitation, 32 (20): 1658–1665. doi:10.3109/09638281003649904.
  • Taylor, N. F. et al. (2004): “Adults with cerebral palsy beneft from participating in a strength training programme at a community gymnasium”. Disability and Rehabilitation, 26 (19): 1128–1134. doi:10.1080/09638280410001712387.
  • Thorpe, D. (2009): “The role of ftness in health and disease: status of adults with cerebral palsy”. Developmental Medicine & Child Neurology, 51: 52-58. doi.org/10.1111/j.1469-8749.2009.03433.x.
  • Tosi, L. L et al. (2009): “Adults with cerebral palsy: a workshop to defne the challenges of treating and preventing secondary musculoskeletal and neuromuscular complications in this rapidly growing population”. Developmental Medicine & Child Neurology, 51: 2–11. doi:10.1111/j.1469-8749.2009.03462.x.
  • Turk, M. A. (2009): “Health, mortality, and wellness issues in adults with cerebral palsy”. Developmental Medicine & Child Neurology, 51: 24-29. doi.org/10.1111/j.1469-8749.2009.03429.x.
  • Turk, M. A. et al. (2001): “The health of women with cerebral palsy”. Physical medicine and rehabilitation clinics of North America, 12 (1): 153-168. doi.org/10.1016/j.apmr.2004.03.014.
  • Verdugo, M. A. y Navas, P. (2017): Todos somos todos: derechos y calidad de vida de las personas con discapacidad intelectual y mayores necesidades de apoyos. Madrid: Real Patronato sobre Discapacidad.
Fuente de los datos: Dialnet